Claire was discharged and home Saturday evening. As of today, she has officially adjusted to her new life. Her physical therapist and homeboubd teacher came by this week and said she's doing great! She's still behind physically, but she's ahead with her numbers and letters! Go Claire! Amelia is also a growing baby as she … Continue reading Home and Adjusting
Claire's new kidney is doing great. Her electrolytes and everything are evening out. She's still in the ICU, just in case. We're monitoring and waiting to make sure the kidney works 100%; and that she can breathe with the new pressure in her tummy. Much love, Mom and Dad Hughes Claire pre-surgery Claire post-surgery
Claire is out of surgery. Doing well. Thanks for the prayers. Keep praying she recovers quickly. Much love, Mom and Dad Hughes
At 7 am this morning, Dad got the call. We have a kidney!!! Claire's just gone in to surgery. She'll be in the hospital for a few days. Prayers for the kidney to work perfectly! (Pictures and other info to come soon) Much love and thanks, Mom and Dad Hughes
The end of summer is fast approaching for Mom Hughes who goes back to work next week (classes and then actual paid work the week after). It's a bittersweet end, but Mom is so happy to have gotten the summer to play all day with her beautiful two girls. Since the last post. . . … Continue reading End of Summer
To pick up where we left off, Claire came home the day after her surgery only to go back again a few days later for a sinus infection. The hospital stay was only for insurance as she was breathing awfully fast. Now, she is home again and finally all better! Not much else has happened … Continue reading Happy 4th!
So, Claire took a ride in the ambulance yesterday at three in the morning. Poor baby's hemodialysis catheter broke off and subsequently blood was everywhere. Luckily, Cooks was able to get a new one placed. They said that this will be the last time they can place one because there is so much scar tissue. … Continue reading Whelp… (Well…)
So, as previously mentioned, over the past few weeks, we've had a lot going on. First, Amelia made a surprise entrance. Then, we went to the zoo, took flower pictures, and had a birthday. Claire is three years old!!! And Amelia will be 3 months old tomorrow. Crazy. It's also crazy that Claire is super … Continue reading Blast from the Past
Well, maternity leave is long over and it's back to work tomorrow. Over the past several weeks we've had a birthday, a zoo trip, and special pictures (flower pics). All pictures will be posted throughout this week. An update: Claire is enrolled in school and starts therapy ("school") this week. She's excited as are Mom … Continue reading So Busy!
Claire was officially listed as "active" on the transplant list as of February 27th. The hospital bag is packed and the family is waiting on the call. There's no telling when a kidney will be available, but the family is hoping soon (while Mom is still on maternity leave). However, you know what they say … Continue reading Claire’s Listed!