Claire is approaching two years old! So much has happened in the past two years, it's unbelievable. More unbelievable is that Claire's hand, which the doctor suggested would need a skin graft to heal properly, has healed on its own. (In case you don't remember or if it hasn't been mentioned, Claire's left hand was … Continue reading Home for Mother’s Day!
It's lovely how technology seems to fail us at times. But woe is life. Apparently, several posts that were supposed to have been loaded onto the blog over the past month have been "lost." Or so says my computer. Whatever. The point is now that you, dear Reader, have a ton of pictures to look at. Probably … Continue reading Retry Post
Claire finally came home from her earlier hospital trip on February 15th, only to go back on February 21st. She had an ulcer that compromised half of her stomach. Though that seems to be fixed now, Claire also had an issue where an IV infiltrated and caused calcium to eat away at the skin on … Continue reading It’s life
Thank you everyone for your thoughts and prayers.Claire is doing much better. We're still in the hospital, but she is needing much less oxygen support than before. Moreover, she is much more active and happy, though she complains (a lot!) about being stuck in bed. There is still no word on when she'll return home, … Continue reading Merry Christmas, Happy New Year, etc. Part Two . . . Finally
Sorry, everyone!Claire came down with a case of RSV and, of course, the whole family got it also. Claire is currently in the hospital. She's stable, but having trouble maintaining her oxygen. The plan right now is to help her wean off of the oxygen as she recovers. That's it so far. SIDE NOTE: Don't know … Continue reading Break on the three post program
It's been eventful in the month since the last update. The family has either been moving, sick, or working (or all three). Due to this, a few family and friends have missed their baby fix. To make up for that (and to give the family more time to gather all the pictures), this is part … Continue reading Merry Christmas, Happy New Year, and to and from the Hospital yet again
Claire has had an eventful few weeks. Besides pulling out her HD catheter and then her body refusing PD and HD for a bit, she's also had new shots and new teeth. Oh, and a new home. Or, at least, she will soon!Mom and Dad signed papers for their first home yesterday (we're waiting on … Continue reading Moving!
Sorry for the late update, but yes, Claire is home. We are all very happy to be home. Due to busy scheduling who'll will be explained later, more updates (and pictures! to come on Sunday, December 6th!Thank you all for your continuous support,The Hughes FamilyClaire saying "hi!" to the camera today.
Claire went back into the hospital a week ago because she pulled out her HD (hemodialysis) catheter. After much trial and error and a three hour surgery, we are trying PD (peritoneal) dialysis again. It's not working excellently, but the doctors are working on a plan for her. She, however, is ready to go home and … Continue reading Hospital Again
It was Claire's second go at daylight savings time, but with her shots and vaccines, this last week was drenched in dirty diapers and extended nap times. Now, she is back to normal and wanting to play all day. This child doesn't sleep! But that's okay as she continues growing, catching up developmentally. She is still not … Continue reading Daylight Savings Time