One Year Later

Claire's a year old!!It's amazing that it has already been a year since her birth.On Wednesday, May 13th, Claire celebrated her 1 year birthday. The nurses supplied her many presents and balloons; she rode in a wagon with these down to the cafeteria and playground for the first time in her life. Later that day, … Continue reading One Year Later


Surgery Success

Claire's surgery went really well. She is now out of the ICU and into a room. Her hemodialysis treatments have been going well and now we are just working to control her blood pressure. 

Small Update

Just a quick check-in!Claire will be having surgery tomorrow (Monday). The exact time is unknown.The surgery is to place a hemodialysis catheter into her neck/chest area since PD failed. This is a somewhat more risky surgery as they do not make these catheters for children.Until then, Claire is being sedated and will have to be … Continue reading Small Update

Late to the party

Well, things have definitely been happening in the Hughes family.Claire has been extubated and re-intubated. After the second round of hemodialysis, Claire began to have troubles stabilizing her heart rate. It would drop low (50s) or shoot high (180s). That is when she was re-intubated and given an echo to check her heart. It was … Continue reading Late to the party


Claire already had two teeth, now she seems to be chomping at the bit for more. Well, maybe that's just how the family feels. All her teeth are coming whether she wants them to or not. Currently in the process of cutting two teeth and several more can be seen in the gums (and by several we … Continue reading Teething!