Claire's a year old!!It's amazing that it has already been a year since her birth.On Wednesday, May 13th, Claire celebrated her 1 year birthday. The nurses supplied her many presents and balloons; she rode in a wagon with these down to the cafeteria and playground for the first time in her life. Later that day, … Continue reading One Year Later
Claire's surgery went really well. She is now out of the ICU and into a room. Her hemodialysis treatments have been going well and now we are just working to control her blood pressure.
Just a quick check-in!Claire will be having surgery tomorrow (Monday). The exact time is unknown.The surgery is to place a hemodialysis catheter into her neck/chest area since PD failed. This is a somewhat more risky surgery as they do not make these catheters for children.Until then, Claire is being sedated and will have to be … Continue reading Small Update
Well, things have definitely been happening in the Hughes family.Claire has been extubated and re-intubated. After the second round of hemodialysis, Claire began to have troubles stabilizing her heart rate. It would drop low (50s) or shoot high (180s). That is when she was re-intubated and given an echo to check her heart. It was … Continue reading Late to the party
Well, that about sums it up. Claire is again in the hospital. Poor baby has had a lot of trouble the past few days with dialysis. Her peritoneal space is either absorbing the dialysis fluid thus leading her to retain a great amount of fluid, or is blocking the fluid from draining properly ending with … Continue reading Back to the Hospital #3
Claire already had two teeth, now she seems to be chomping at the bit for more. Well, maybe that's just how the family feels. All her teeth are coming whether she wants them to or not. Currently in the process of cutting two teeth and several more can be seen in the gums (and by several we … Continue reading Teething!
Thank you for your patience.Mom and Dad Hughes have been taking a break from the blog to focus more on Claire's health with the doctors. Claire's dialysis hasn't been going well for the last few weeks and so, before the snow and ice hit, she was admitted to the hospital.When talking with the doctors it … Continue reading Snow Days at the Hospital