Small Update

Just a quick check-in!Claire will be having surgery tomorrow (Monday). The exact time is unknown.The surgery is to place a hemodialysis catheter into her neck/chest area since PD failed. This is a somewhat more risky surgery as they do not make these catheters for children.Until then, Claire is being sedated and will have to be … Continue reading Small Update

Late to the party

Well, things have definitely been happening in the Hughes family.Claire has been extubated and re-intubated. After the second round of hemodialysis, Claire began to have troubles stabilizing her heart rate. It would drop low (50s) or shoot high (180s). That is when she was re-intubated and given an echo to check her heart. It was … Continue reading Late to the party