May 30, 2014

Baby girl had a great day today!! Her dialysis fill is up to 70 mL. (She has to be up to 100 mL before she can be put on the machine and she has to be on the machine before she can come home.) Dad also got to hold her again which she seems to … Continue reading May 30, 2014


May 25, 2014

Baby Claire is finally starting to eat, though through the tube. Her little tummy is ready to digest it. There is still a long way to go before she can come home, but even the little milestones deserve a cheer! ­čÖé  

May 15, 2014

Claire's surgery was pulled forward to today.There is much to tell- too much for this sleepy momma- but the highlight is that she is out of surgery and is sleeping well.┬áThe larger kidney was taken out with the connecting adrenal gland.┬áIt is still being debated and tested as to whether Claire has cancer or not.┬áDialysis … Continue reading May 15, 2014

May 8, 2014

The Delivery (Updated Plan) After much discussion between doctors- ob, renal, neonatal, radiology,- Dr. Bleich informed the family of the current decisions. The MRI was cancelled due to the data not being worth the cost; to clarify, the MRI would not give the doctors any information that would help in the decision of when to … Continue reading May 8, 2014

May 7, 2014

The family had another sonogram and doctor appointment today. The doctor found the cysts to be growing rapidly and similar to that of a mass, but it is all very uncertain as the characteristics do not align strictly with either diagnosis. In light of this discovery, the doctor will confer tomorrow with her partners and … Continue reading May 7, 2014


There is no update as of yet, but we do have a little treat for those who like this sort of thing. . .Baby Claire's Heartbeat145 - 155 bpm//* This can only be heard on the computer. Most cellular devices will not play the audio.